Best Treatment for Adrenoleukodystrophy (ALD) in Children, Vijayawada

Find a Doctor

Expertise you can trust, Meet our esteemed doctors who bring exceptional knowledge, compassion, and innovation to provide top-notch care for your health and well-being.

Dr. SRIKANTH DOMALA - Consultant-Pediatric Neurology

Dr. SRIKANTH DOMALA

Consultant-Pediatric Neurology

Telugu,English Currency Nagar, Governorpet

Best Treatment for Adrenoleukodystrophy (ALD) in Children, Vijayawada

Best Treatment for Adrenoleukodystrophy (ALD) in Children, Vijayawada , Adrenoleukodystrophy (ALD) is a rare and devastating genetic disorder affecting the nervous system and adrenal glands, primarily affecting boys. Rainbow Children's Hospital in Vijayawada is dedicated to providing specialized care for neurogenetic disorders like ALD, offering tailored treatment options and comprehensive support for affected children and their families.

ALD is characterized by the accumulation of fatty acids in the body, leading to damage in the myelin sheath—a protective covering of nerve cells in the brain. This damage results in neurological symptoms that worsen over time, including impaired vision, difficulty in speaking and swallowing, seizures, loss of muscle control, and cognitive decline. The disease progression varies widely among individuals, impacting their quality of life differently.

While there is currently no definitive cure for ALD, Rainbow Children's Hospital focuses on managing symptoms, providing supportive care, and addressing specific complications that arise due to the disease. Treatment strategies often involve hormone replacement therapy to manage adrenal insufficiency, medication to alleviate symptoms such as spasticity and seizures, and specialized therapies to improve mobility and function.

In some cases, bone marrow transplant (BMT) might be considered, particularly in the early stages of the disease. BMT aims to replace the faulty cells with healthy ones to slow down the progression of ALD. However, this approach carries risks and may not be suitable for all individuals with the condition. Rainbow Children's Hospital prioritizes compassionate care, multidisciplinary support, and continuous monitoring to enhance the quality of life for children affected by ALD and their families, navigating the challenges associated with this complex neurogenetic disorder.

Best Treatment for Adrenoleukodystrophy (ALD) in Children, Vijayawada

Blogs

Discover our most recent health articles provided by our reliable experts.

Childrens Hospitals In RCHI Banjara Hills
July, 2022

Sleep problems in children: Tips to promote good sleep hygiene

Centre of Excellence
Childrens Hospitals In Banjara Hills
July, 2022

What is Autism Spectrum Disorder and how is it diagnosed?

Centre of Excellence
Pediatric Hospital In Chennai, Best Hospital In Chennai For Normal Delivery
July, 2022

Newborns sleep and sleep deprived parents

Centre of Excellence
Childrens Hospitals In RCHI Banjara Hills
July, 2022

Sleep problems in children: Tips to promote good sleep hygiene

Centre of Excellence
Childrens Hospitals In Banjara Hills
July, 2022

What is Autism Spectrum Disorder and how is it diagnosed?

Centre of Excellence
Pediatric Hospital In Chennai, Best Hospital In Chennai For Normal Delivery
July, 2022

Newborns sleep and sleep deprived parents

Centre of Excellence
Childrens Hospitals In RCHI Banjara Hills
July, 2022

Sleep problems in children: Tips to promote good sleep hygiene

Centre of Excellence
Childrens Hospitals In Banjara Hills
July, 2022

What is Autism Spectrum Disorder and how is it diagnosed?

Centre of Excellence
Pediatric Hospital In Chennai, Best Hospital In Chennai For Normal Delivery
July, 2022

Newborns sleep and sleep deprived parents

Centre of Excellence

Media

Rainbow Hospitals' Advanced Ambulances Save Neonates Rainbow Hospitals' Advanced Ambulances Save Neonates
Cerebral Palsy in Neonates Cerebral Palsy in Neonates
23 Years of Spreading Smiles | Rainbow Children's Hospital 23 Years of Spreading Smiles | Rainbow Children's Hospital
Children with Congenital Heart Disease Children with Congenital Heart Disease
Vaccine Tension Vaccine Tension
Missed Vaccination Due to Pandemic? Time to Catch Up Missed Vaccination Due to Pandemic? Time to Catch Up
Autism strikes toddlers Autism strikes toddlers
Autistic Children Need Better Care - Experts Autistic Children Need Better Care - Experts
Bed Wetting in Children Bed Wetting in Children
Autism Autism Spectrum Disorder (ASD) (mental retardation) is a Public Health Problem. Autism Autism Spectrum Disorder (ASD) (mental retardation) is a Public Health Problem.
Missing Vaccination? - Catch-Up Now Missing Vaccination? - Catch-Up Now
Heart Diffects Since in Birth Heart Diffects Since in Birth
Parents of Parents of "Small Preterm Babies" Need not Lose Hope
Home Healthcare the New Norm during Milder Covid Variant in T Home Healthcare the New Norm during Milder Covid Variant in T
Parents Lose Appetite as Kids under Omicron Cloud Push Plate Away! Parents Lose Appetite as Kids under Omicron Cloud Push Plate Away!
Study Covid-hit Kids, Experts Urge Govt Study Covid-hit Kids, Experts Urge Govt
Season of Season of "Sickness" Sees Rise in Number of Little Patients
City Hopes See Rise in Kids Admission City Hopes See Rise in Kids Admission
Milk vomiting below 6 months of the baby.. What is the solution? Milk vomiting below 6 months of the baby.. What is the solution?
Cerebral palsy sufferers Cerebral palsy sufferers
Cerebral palsy is the dangerious to childrens... Cerebral palsy is the dangerious to childrens...
Diat Therapy Reduces Epileptic Seizures in Children Diat Therapy Reduces Epileptic Seizures in Children
Early Diagnosis is key to Manage Hormone Disorders in Children Early Diagnosis is key to Manage Hormone Disorders in Children
What Killed Jain What Killed Jain
'Cos Fathers Also Need to do their Bit to Help Nursing Mothers Breastfeed 'Cos Fathers Also Need to do their Bit to Help Nursing Mothers Breastfeed
Image Rainbow Hospitals' Advanced Ambulances Save Neonates
Image Cerebral Palsy in Neonates
Image 23 Years of Spreading Smiles | Rainbow Children's Hospital
Image Children with Congenital Heart Disease
Image Vaccine Tension
Image Missed Vaccination Due to Pandemic? Time to Catch Up
Image Autism strikes toddlers
Image Autistic Children Need Better Care - Experts
Image Bed Wetting in Children
Image Autism Autism Spectrum Disorder (ASD) (mental retardation) is a Public Health Problem.
Image Missing Vaccination? - Catch-Up Now
Image Heart Diffects Since in Birth
Image Parents of "Small Preterm Babies" Need not Lose Hope
Image Home Healthcare the New Norm during Milder Covid Variant in T
Image Parents Lose Appetite as Kids under Omicron Cloud Push Plate Away!
Image Study Covid-hit Kids, Experts Urge Govt
Image Season of "Sickness" Sees Rise in Number of Little Patients
Image City Hopes See Rise in Kids Admission
Image Milk vomiting below 6 months of the baby.. What is the solution?
Image Cerebral palsy sufferers
Image Cerebral palsy is the dangerious to childrens...
Image Diat Therapy Reduces Epileptic Seizures in Children
Image Early Diagnosis is key to Manage Hormone Disorders in Children
Image What Killed Jain
Image 'Cos Fathers Also Need to do their Bit to Help Nursing Mothers Breastfeed
FAQs
What causes Adrenoleukodystrophy (ALD)?
ALD is caused by a mutation in the ABCD1 gene, leading to the accumulation of very-long-chain fatty acids (VLCFAs) in the body. These fatty acids build up in tissues, particularly affecting the myelin sheath in the nervous system and the adrenal glands.
What are the early signs and symptoms of ALD in children?
Early symptoms might include behavioral changes, learning difficulties, vision problems, hearing loss, and difficulties with coordination and walking. However, symptoms can vary widely among individuals.
Is there a cure for Adrenoleukodystrophy (ALD)?
Currently, there is no definitive cure for ALD. Treatment focuses on managing symptoms, providing supportive care, and addressing complications that arise due to the disease progression.
Who is most at risk of developing ALD?
ALD primarily affects boys, as the gene mutation is located on the X chromosome. However, carrier females can also develop symptoms, albeit typically less severe.
What is the role of bone marrow transplant (BMT) in treating ALD?
BMT may be considered in some cases, particularly in early-stage disease, to replace faulty cells with healthy ones. BMT aims to slow down the progression of the disease, but it carries risks and might not be suitable for everyone with ALD.
Home Best Children Hospital Child Care Best Children Hospital Women Care Best Children Hospital Fertility Best Children Hospital Find Doctor